Below are few select parent written stories for to inspire hope.
LAURA’S STORY OF HOPE & STRENGTH
By Lynette S.
Desperate, my research at the local library helped me find “Is it “Just a PHASE?” by SWEDO & LEONARD – The chapter on PANDAS was validation to me that I WAS NOT CRAZY because by then I thought I was. We went to pediatrician (again) and I begged/demanded a strep test on her slightly red throat which came back positive! Her PANDAS onset was shortly after her 3rd birthday. We dealt with PANDAS on and off throughout her elementary school years and even today it is very difficult to think of the dark days and difficult weeks this perplexing disorder robbed her and our family of.
Six years of debilitating tics brought both my husband and I down to our knees, quite literally. Praying for guidance, we were led to Dr. M. Kovacevic in the Chicago area who offered long-term hope (dare I say cure) for our son. We found Dr. Kovacevic was easily accessible and treated our case with the urgency that that my husband and I felt. My son’s initial blood titer and a trial of steroids verified what I always knew in my heart—my son was having a physical reaction in his brain to cause his symptoms. In July 2007, my son had a life-changing IVIG treatment. It was so simple, yet so effective.
“As a healthcare professional and a mother, I was compelled to get the word out on this complex disorder. PANDAS is no longer considered to be as rare as was once thought. I’m sure there are families out there who have resigned themselves to a lifelong battle with mental illness, but that may not truly be the case. “It is likely that following a century of unsuccessful search for the disease of the mind, the body will be where the answers shall be found.” (M. Kovacevic, MD) If just one child, although I hope many more, may be helped by another healthcare professional or parent reading this article, then I will have fulfilled my mission. There is hope for the child with PANDAS. And the lives once filled with utter pandemonium shall be transformed into lives filled with peace.”