PANDAS and PANS are clinical diagnoses which is heavily reliant on the symptom presentation.
A clinical diagnosis is a diagnosis not soley based on a diagnostic test such as a blood test. Rather, the diagnosis is based on the collection of signs, symptoms, medical history, and laboratory findings. Currently, there is not a 100% definitive test for PANDAS or PANS.
Showing the severity of symptoms, the duration, and the onset are importants tool in determining a possible diagnosis. The scale below will help parents present their child’s symptomatology.
The following scale is based on the clinical experience of Susan Swedo, M.D., Miroslav Kovacevic, M.D., Beth Latimer, M.D., and James Leckman, M.D., with the help of Diana Pohlman, Keith Moore and many other parents.
The following scales are what doctors use to measure the severity of OCD and TICs. Review these scales and show them to your doctor and communicate that your child went from normal levels (1-5) to abnormal (10 and above) overnight. OCD may present as severe anxiety. Do not assume your child does not fall into the realm of OCD because they do not show the “stereotypical symptoms” of OCD, such as hand obsessive washing and fear of germs.