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STATISTICS

 

PANDAS/PANS PREVALENCE

A conservative estimate is 1 in 200 children in the U.S. alone. However, the true lifetime prevalence of PANDAS/PANS is not known.*

The statistical relevance is equal to Pediatric Cancer¹, Pediatric Diabetes I and II², and ALS³. The healthy outcome of a child’s life can be seriously affected, but research and treatment for PANDAS/PANS is scarce.

How do we determine the estimated lifetime prevalence of PANDAS/PANS for children 18 and under?
Approximately 500,000 children are diagnosed with OCD in U.S.
Approximately 138,000 children are diagnosed with Tourette Syndrome in the U.S.
1.5 million+ children were diagnosed with serious anxiety/phobia/OCD/bipolar in a given year (1994-2011)
“Dr. Swedo estimates that (PANDAS) kids may make up as much as 25 percent of children diagnosed with OCD and tic disorders, such as Tourette syndrome.”⁷
*The estimated prevalence is based on PANDAS Network research.


PANDAS/PANS POPULATION ANALYSIS

Based on 700 family self-reports

AGE OF ONSET

  • 1 to 3 years       11%
  • 4 to 9 years      69%
  • 10 to 13 years   19%
  • 14+ years            1%

PRIMARY SYMPTOMS

  • OCD      37%
  • TICS      14%
  • BOTH    49%

INFECTIONS REPORTED

  • Strep     81%
  • Other     19%
    (Mycoplasma, Lyme, etc.)

FAMILY MEDICAL HISTORY IN FIRST OR SECOND GENERATION

Based on 100 family self-reports

70% of families reported BOTH

  • Autoimmune Illness
  • Strep Related Severity Illness

PANDAS/PANS POPULATION OVERVIEW

  • Young age at onset: 6.5+/- 2 years for Tics and 7.4 +/- 2 years for OCD⁸
  • The ratio for boy to girls is 2.6:1 ; below age 8 years, the ratio of boys to girls is 4.7:1⁸

CITATIONS
¹KantarHealth, CancerMPact Patient metrics U.S., accessed June 28, 2012
²National Diabetes Information Clearinghouse/NDIC (information as of 2010); http://1.usa.gov/LfNKrk
³ALS Association (information as of 2011); http://bit.ly/nRR94U
⁴IOCDF.org; http://bit.ly/rimFAb
⁵CDC.gov; http://1.usa.gov/MoghKH
⁶Centers for Disease Control and Prevention. Mental health surveillance among children — United States 2005–2011. MMWR 2013;62(Suppl; May 16, 2013):1-35.
⁷Scientific American: From Throat to Mind: Strep Today, Anxiety Later? (2010); http://bit.ly/5ro0mv
⁸Swedo et al (1998) PANDAS: Clinical Description of the First 50 Cases; http://ajp.psychiatryonline.org/data/Journals/AJP/3685/264.pdf

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