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OUR MISSION

 

THE PANDAS NETWORK MISSION STATEMENT

PANDAS Network is dedicated to improving the diagnosis and treatment of children with PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome). Armed with an impressive network of doctors, researchers and scientists, PANDAS Network strives to collaborate with subject matter experts, build public awareness, provide family support, and gather data and resources to better inform parents and the medical community about PANDAS and PANS.


HOW WE WORK TO FULFILL OUR MISSION:

PANDAS Network is a non-profit organization (FEIN 37-1666562)* founded by parents of children afflicted with PANDAS/PANS. Since 2009, we have raised awareness of PANDAS and PANS onset and course of illness by providing:

  • An ongoing database of new PANDAS and PANS cases.
  • Parent referrals to support groups and physicians.
  • A conduit for new researchers to navigate collaborations and new treating physicians to find information.
  • Online newsletters to parents and physicians about latest research.
  • Information that is medically accurate and reviewed by our Scientific Advisory Board.

 

*The PANDAS Network official name is P.A.N.D.A.S. Network.org, a non-profit to cure Pediatric Acute Neuropsychiatric Syndromes, Inc. The PANDAS Network website is www.pandasnetwork.org. PANDAS Network is not affiliated with any other nonprofit or groups that have registered their domains as pandasnetwork.net or .com; and the PANDAS Network Board of Directors does not endorse their activities.


HOW PANDAS NETWORK BEGAN

PANDAS Network grew from a handful of families who were sickened by PANDAS in 2007-2009. There was little awareness about PANDAS or how children were being healed with methods the NIMH had documented years earlier.

These parents learned that early intervention was key to their children’s eradication of symptoms.


OUR CORE VALUES

Thank you to the growing corps of PANDAS Network supporting parents, providers and friends. Our average monthly website traffic has more than tripled from 10,000 in 2013 to 30,000 monthly in 2015. We hope this is in part because of our improved look and expanded resources available on the website and recognition in 2013 as the NIMH Outreach Partner.

We attribute much of this growth in large part to the dramatically increased visibility and acceptance of PANDAS/PANS that has resulted from recent medical publications as well as PANDAS Network’s ongoing outreach and media education efforts.

As many of you know, PANDAS Network was started in 2009 by and for parents and it continues to be operated exclusively by parents with top doctors represented as board members and advisors. We are proud that we have been able to stay true to our core principles while gaining the respect and partnership of the NIMH, top physicians, and researchers. PANDAS Network has been the only nonprofit consistently invited to the table – in board rooms, legislative offices, and hospitals – representing children and families whose lives have been touched by PANDAS and PANS. We are thrilled and honored to fill this role and we take it very seriously.

As pioneers championing an emerging and complex disease shrouded in controversy, we are challenged to pursue innovation and and promotion of the type of research that is necessary to gain legitimacy and acceptance on a broad scale.

While our community has grown tremendously from humble beginnings, we remain a grassroots effort with a modest budget. $100,000 of our income in 2014 came directly from parents and other individuals who chose to support grassroots events and fundraising. With an ambitious agenda upon us, we continue to fundraise and are pursuing private grants and sponsorships, but always with integrity. We have never and will never take funding from any source that would compromise our allegiance to the children who we aim to serve. For this reason, especially, the support of families, doctors and other members of our community is vital to our stability and ongoing presence at the forefront of the PANDAS/PANS movement.

We thank you for your confidence in our organization and for your support which enables us to be a voice for families and a partner to the medical leaders who are working tirelessly to heal our children.

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